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Muscular Dystrophy Media

By the community, for the community — stories that Uplift.

Check out some of the media made by the Muscular Dystrophy community. From documentaries to art galleries, hear from the voices within our cause.

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Documentary

The Remarkable Life of Ibelin

Follow the journey of Mats Steen, a Norwegian man with DMD who finds freedom, friendship, and meaning in the virtual world of World of Warcraft. See as he lives a rich, fulfilling life as his character Ibelin Redmoore, forming deep bonds with online friends.

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Photography Gallery

Positive Exposure

Founded and led by award-winning photographer Rick Guidotti, Positive Exposure is a New York-based media gallery using photography, film, and education to celebrate human diversity and challenge stigma.  Their work, including the FRAME library, offers a more personal, humanized glimpse into different medical conditions including Muscular Dystrophy.

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Podcast

The Accad and Koka Report

Co-hosted by Dr. Michel Accad and Dr. Anish Koka, this podcast features thought-provoking interviews on topics central to medicine—ranging from science and policy to economics and ethics—all with a focus on protecting the integrity of the doctor-patient relationship.

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*COMING SOON*

The Sunshine Daydreamer

The Sunshine Dreamer is a powerful documentary that follows the personal journey of individuals impacted by Duchenne Muscular Dystrophy and highlights the transformative potential of stem cell therapy. Blending lived experiences with expert insight, the film explores how this emerging treatment is changing lives and shaping the future of care for DMD and other conditions.

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Documentary

Duchenne Boys

The debut feature documentary by British-Iranian filmmaker Sohrab Kavir, who lost his three brothers to Duchenne muscular dystrophy. Motivated to make a difference, Kavir sets out to improve the lives of others with Duchenne, particularly in Iran. Along his journey, he meets Matin, a young British-Iranian powerchair soccer player, and is inspired to form Iran’s first Duchenne powerchair team for the first ever international online soccer match. Edited by Oscar-winning Hayedeh Safiyari, Duchenne Boys is an inspiring story of resilience, connection, and redemption.

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Art Gallery

The Muscular Dystrophy Association (MDA) Art Collection

The Muscular Dystrophy Association (MDA) Art Collection, established in 1992, showcases the creativity of artists living with muscular dystrophy, ALS, and related neuromuscular diseases. Featuring 400 original works from artists aged from 2 to 84 across all 50 states, D.C., and Puerto Rico, the collection showcases a wide range of artwork; from traditional oils and watercolors to corn collages and paint applied with wheelchair wheels. Through imaginative landscapes, portraits, and abstract expressionists, these artists channel their unique perspectives, into powerful creative works.

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